In honor of late Ridgefield girl, a foundation to ‘enrich the lives’ of kids with special needs’
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RIDGEFIELD — For a lot of youngsters, summer camp is a massive ceremony of passage — no matter if it entails heading to a snooze-absent camp a hundred miles absent or to a working day camp around residence. But kids with exclusive desires are usually remaining out of the equation, particularly if they need unique gear to acquire part in the fun.
A Ridgefield-based mostly business has assisted 1000’s of young ones with specific demands get the devices and equipment they will need and get part in the total assortment of things to do that other little ones do — and not just summer time camp. The group, the Molly Ann Tango Memorial Foundation, was founded in 2004. It bears the title of Molly Ann Tango, who was born prematurely and endured brain damage as a final result. She died in December 2003.
“We were explained to that Molly might not stay to 6 months in age, still she created it to age 10,” recalled Cathy Tango-Dykes, Molly Ann’s mother, who co-started the group with her ex-partner, Todd Tango. Whilst she was alive, the spouse and children frequently fought with insurance policy companies to receive the devices and products and services they knew she required, but which weren’t deemed medically needed by insurers.
Even when items are lined, insurance policies ordinarily pays for a little fraction of the expense. Also, center-course households typically are not eligible for assistance from governing administration-operate social services businesses.
“There is so considerably that specific-demands children require, and it can all be tricky to pay for,” Tango-Dykes explained. “After she died Todd and I needed to assistance the quite a few family members who are center-class like ours. Our mission is to enrich the life of kids and their people by aiding them to get what they want.”
Since its founding, the Molly Ann Tango Foundation has furnished children and family members with machines these kinds of as wheelchairs and health-related machines, adaptive bikes, wheelchair ramps, raise methods and security machines. The basis also can make it attainable for mother and father to attend specialised professional medical conferences, to renovate their residences to make them additional available, and to acquire specifically outfitted vans.
Tuition aid for summer camp is also a significant element of the mix, and it can be pricey. “Camping in specific is not easy for numerous family members to afford to pay for, and faculties don’t present a large amount of solutions through the summer season,” stated Tango-Dykes. “Attending camp offers these little ones something to do and for the family members a little bit of a respite.”
In addition, some camps deliver specialized products and services just to children with disabilities, often with specialised conditions. One such camp is Lefty-Righty of Connecticut, or LARC, a 3-week system for young ones with paralysis on a person side of the physique.
Other camps goal to integrate young ones with specific desires into a mainstream camp practical experience. Hand in Hand, a day camp operate by the Stamford Jewish Local community Centre, presents children with particular demands from pre-kindergarten through eighth quality with the chance to take part in a summer season camp alongside their peers with out disabilities.
“Our foundation operates from an fundamental belief that unique-requirements kids’ life need to be as rich as any other kids… they want the summer-camp working experience, also,” claimed Erica Mauro, a situation supervisor for the foundation who also functions as its summer months camp coordinator. “Plus, this sort of camp can be an enriching working experience for those people ‘typical’ little ones, way too.”
That require for conversation is especially acute now. When educational institutions remained closed for the reason that of COVID-19, college students suffered from a deficiency of interaction. This deficit affected little ones with particular requirements additional since they count on colleges for products and services these as behavioral counseling, speech and actual physical remedy.
In addition, interaction among little ones with distinctive requires and their friends is constantly academic, which created on the internet classrooms a weak substitute. “Summer camp presents young ones a way to make up what they may well have missing for the duration of the college 12 months,” Mauro explained.
The basis places no limitations on requests for aid for camp or for any type of equipment or assistance. “We take just about every request less than thought,” stated Tango-Dykes. “For campers, some people will check with for many weeks, although some others will question for just a couple of days. We do as a great deal as we can to accommodate every person, but what we can give relies upon on what we have funding for. And we want to be reasonable to all who apply.”
The group receives a wide selection of requests. A stair elevate can value hundreds of dollars, but with no one particular a household with a boy or girl who has limited mobility might be forced to locate a dwelling which is all on one level. This foundation can support them with these types of a will need. Also, a backyard fence can provide the parents of a youngster with specific needs with peace of mind.
“You’d never be equipped to connect with up your insurer and say, ‘I want a fence’ and have them agree,” Mauro reported. “But as a dad or mum of an autistic child, I know how vital a fence can be. It allows young ones enjoy exterior safely and securely with no wandering off the house.”
The corporation is run completely by volunteers, most of whom have a human being with unique wants in their people. As this sort of it relies upon solely on donations and fundraising, though it does on occasion spouse with other groups to assistance family members in need to have. Though fundraising is ongoing, the group’s significant annually party is its Mother’s Day Luncheon.
The luncheon constantly options a mother as visitor speaker who describes how her own household was assisted by the foundation. The event is a well known affair and Tango-Dykes approached this year’s occasion with some trepidation.
“Our luncheon this previous May well was the first we have experienced given that the COVID shutdown of 2020,” Tango-Dykes reported. “But we had a excellent turnout producing this calendar year a terrific return to regular.”
If you require support from the Molly Ann Tango Memorial Foundation, check out the group’s internet site at www.mollytango.org, and click on on the tab “How We Can Enable.” On it is an application for support.
Donations are welcome. Produce to Molly Ann Tango Memorial Basis, P.O. Box 15, Ridgefield, CT 06877 or send an e mail to [email protected]. The group’s mobile phone range is (203) 403-7070.
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